Still Alice

I knocked off early yesterday to see an advance screening of Still Alice, the film adaptation of Lisa Genova’s novel about a professor diagnosed with younger onset dementia. As a dementia researcher, avid filmgoer, and fan of the book, I walked in with high expectations… but if Still Alice had been a film about anything other than dementia, I would have walked straight back out.

Yes, Julianne Moore is fantastic and it’s great to see younger onset dementia on the big screen. But as a piece of cinema, it’s appalling. The pacing is uneven, the other actors are painfully earnest (Alec Baldwin as a professor? Please!), and the dialogue is straight out of a soap opera. As a vehicle for improving public understanding of dementia, it also lacks depth. The portrait of a white, wealthy, heterosexual woman with a supportive family, a private neurologist, and in-home help misrepresents the reality of life for most people with dementia and their families. To be fair, this portrayal is true to Genova’s book, but I think it’s also indicative of a bigger problem in mainstream cinema.

The mainstream film industry loves an actor who can portray a cognitively or intellectually impaired person with just enough pathos to make us cry into our popcorn but not so much method that we’d be uncomfortable. Think Sean Penn in I Am Sam, Tom Hanks in Forrest Gump, Leonardo DiCaprio in What’s Eating Gilbert Grape, Julie Christie in Away From Her, and Robert Downey Jr’s great line about “not going the full retard” in Tropic Thunder. The mainstream film industry prefers actors and screenplays that make us believe that if we met this character in the real world we wouldn’t treat them with the same ignorance, arrogance, and discrimination they’ve encountered on screen.  And it simply doesn’t option books or greenlight screenplays that are too realistic*, preferring to leave the tough stuff to foreign films, independents, and documentaries which, no matter how good they are, simply lack the reach to change public perceptions.

Still Alice is no exception. Yes, we see Julianne Moore wet herself when she can’t remember where the bathroom is and, yes, we see her raging against the diagnosis. But it’s all comfortably cocooned in cashmere sweaters, summer houses, and a functional family dynamic… and it’s not even half of what people with dementia and their families deal with on a daily basis.  This is not the woman who puts her husband with dementia on the bus while she walks home because they can’t afford two fares. This is not the gay man with dementia who’s forced back into the closet because the nursing home staff don’t want other residents to feel “uncomfortable”.  This is not the Murri man found naked in the neighbourhood playground at 2am and taken to the Watch House instead of a hospital. This is not the migrant who’s lost her English but can’t access a care worker who speaks her native language. This is not the woman who is constantly told “you don’t look like you have dementia”. But it’s only when we see these stories on the big screen that public understanding and attitudes might begin to change.

A film shouldn’t be lauded just because it’s about dementia. Actors shouldn’t receive awards for being the best part of a bad film. If the mainstream film industry is going to ‘do’ dementia, let’s demand they do it well. Let’s insist on great films about real people that are compelling, well scripted, well acted, and beautifully made. Surely people with dementia and their families deserve that much.

Notes:
*Barney’s Version, starring the great Paul Giamatti, is a notable exception when it comes to recent mainstream films about dementia, but despite being a compelling and beautifully uncomfortable film, it still has a white, wealthy, heterosexual protagonist.

6 thoughts on “Still Alice

  1. You’ve echoed the same concerns I have had with every film I’ve seen about characters with dementia. The movies are far too clean and nice. There’s no mess, no word salad, and none of the beauty of discovering that people respond to affection long past their ability to speak or move. I was a caregiver in a specialized facility that had all the varieties – early-onset Alzheimers, vascular, Lewy bodies, “wet brain”, the works. I’ve considered writing a screenplay about it, but I’m not sure the audience is ready or interested in facing facts. Families still hide these people away in care homes and stop visiting asap.

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  2. Actually, Julianne spent a lot of time with Alzheimer’s sufferers and she refused to do something that she did not see a patient do. She didn’t want it to be a gimmick. Julianne was brilliant and i thought Baldwin and Stewart were very touching. Lisa Genova is a professional so she knew what she was writing about. It is unfortunate that it didn’t ring true for you but i disagree completely. She certainly wasn’t rewarded for being the best thing in a bad film…

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  3. Well said Siobhan, and Invisible Mikey! As that woman who is constantly told “you do not look like you have dementia”, I’ve thought about writing a screen play too… perhaps we could all work on it together? Although, I’d quite like to base it around the Three Stooges as a pseudo comedy!

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  4. Pingback: Still Alice – The Podcast | Dr Siobhan O'Dwyer

  5. Having nursed a young husband for 4 years until his death, I agree this was too clean. I did however like the last half hour, her portrait when she could not talk was realistic. It would have been nice to see the horrendous details of how it really is.

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  6. Thank you for sharing your reflections. I also notice a strong gender bias. The loving husband doesn’t leave his demanding job, but it’s the younger daughter who give up her dreams. With this choice the film sys that liberal arts education isn’t useful (and the little daughter returned to a wiser life with her mother’s illness) and that the role of the carer is feminine role.

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